16.11.2017 NAI Response to Consultation on Draft Health Information Policy Framework

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The NAI response to the Department of Health consultation on the draft Health Information Policy Framework is now available to download below.

The NAI submission welcomes many aspects of the proposed legislation but recommends further strengthening of the provisions to support patient involvement and requesting clarity on proposed aspects of the framework as follows:

1. Patients should be able to see what information is being held on them and who has accessed it

2. Personal health information can be enriched through enabling patients to contribute their own health data and experience

3. Patients need to be informed of what personal health information is being collected, how it will be used and their own rights in this area.

4. NAI requested a number of clarifications in relation to the "duty to share" including steps to ensure the quality and accuracy of this information and who will be covered under this obligation 

5. The NAI submission highlights the need to ensure that legislation protects the genetic health information of the individual given the potential for sharing of identifiable information.

Attached Documents

PDF icon NAI Response to Draft Health Information Policy Framework (NAI_reponse_to_Draft_Health_Policy_Framework.pdf | 350 kB)
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