22.7.2019 NAI launches Pre Budget Submission on World Brain Day

'22.7.2019 NAI launches Pre Budget Submission on World Brain Day' image

 PRESS RELEASE 22ND JULY 2019

Charities Critical of Government Track Record on Neurological Care on World Brain Day

 

Ireland is increasingly leading the way in researching and developing treatments for neurological conditions but we are failing those in our society who are living with neurological disease.

 

This is the message that will be highlighted by the Neurological Alliance of Ireland, the national coalition for neurological care, at an event in Dublin today to mark World Brain Day. Over 800,000 Irish people are living with neurological conditions including stroke, epilepsy, dementia, acquired brain injury, Parkinson's disease and multiple sclerosis as well as rare and genetic conditions.

 

The Neurological Alliance of Ireland (NAI), an umbrella of over thirty national charities, is using World Brain Day to publish its report card for the current Government, highlighting continued underinvestment in services, growing waiting lists and the failure to meet key commitments in the Programme for Government.

 

Speaking today, Mags Rogers, Executive Director of the Neurological Alliance said "We waited over eight years for an implementation plan for the National Neurorehabilitation Strategy and it was finally published this year with no commitment to investment. That is just paying lip service. Meanwhile charities have seen successive cuts to their funding which is impacting on vital services for people with neurological conditions and their families".

 

The Neurological Alliance of Ireland will also highlight the findings of recent research showing that Irish people with neurological conditions struggle when it comes to employment. 78% of respondents to a recent nationwide survey had to give up work directly as a result of their diagnosis while one fifth experienced significant difficulties in the workplace, with the self-employed twice as likely to report significant issues. 19% had not disclosed their condition to their employer. Jane Whelan, a migraine sufferer speaking at the event notes "At a time of full employment in our economy when we are struggling to fill positions, we continue to loose people from the workforce when often all they need are simple adjustments to enable them to stay in work".

 

The Neurological Alliance are calling for investment in neurology and neurorehabilitation services in the upcoming budget, as well as urgent action to address funding deficits which threaten the vital supports provided by neurological charities.

 

The event is being organised in collaboration with the European Federation of Neurological Associations [EFNA]. Their Executive Director, Donna Walsh adds "Hearing the challenges faced by those living with a neurological condition here in Ireland will inform our EU advocacy activities in areas such as access to treatment. Recent reports suggest Ireland needs to catch up with other EU countries in terms of numbers of neurologists, and access to new and innovative treatments. So, we are eager to discuss further with those directly affected".

 

 

 

 

 

 

 

Notes for Editor

 

The Neurological Alliance of Ireland event for World Brain Day will take place in Buswells Hotel Dublin 11am to 12.30pm on Monday 22nd July. PRESS WELCOME

 

 

 

The Neurological Alliance is the national coalition for neurological care, representing over thirty charities working with people with neurological conditions and their families.

 

Download the NAI pre budget submission (one page summary) at https://bit.ly/2XUeUKf

 

Download the NAI pre budget submission in full at https://bit.ly/2SlXmWb

 

Download the NAI report card on the current Government in relation to neurological care at https://bit.ly/2xRkl20