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Advocacy

(Neurology Services) NAI Patients Deserve Better Campaign for Neurology Nurse Specialists

The NAI actively campaigns for the implementation of the National Model Of Care for Neurology Services in Ireland published by the HSE in 2018. In 2021 the Neurological Alliance of Ireland published a national audit of neurology services: highlighting a range of deficits in staffing and other issues across neurology centres throughout Ireland.  Download the Neurology Audit summary Report  In October 2022 the NAI launched an advocacy campaign to address one of the most significant findings of the audit: the huge shortfall in clinical nurse specialists in neurology. Learn more about the campaign at NAI Patients Deserve Better Campaign for Neurology Nurse Specialists

 

(Neurorehabilitation Services ) NAI patients Deserve Better Campaign for Community Neurorehabilitation Teams

The NAI actively campaigns for the implementation of the 2019 Framework for the National Policy and Strategy for Neurorehabilitation Services. In November 2022 the NAI launched an advocacy campaign calling for implementation of one of the key recommendations of the Neurorehabilitation Strategy: the establishment of a network of nine community neurorehabilitation teams. Find out more about the Patients Deserve Better Campaign for Community Neurorehabilitation Teams. 

 

Get Rare Aware Campaign

NAI is a campaign partner with the Get Rare Aware campaign led by Rare Disease Ireland to raise awareness of rare conditions among elected representatives. Find out more about the campaign at Get Rare Aware 

 

Korsakoffs Syndrome

Korsakoffs is a long term neurological condition that significantly impacts peoples ability to form new memories and can also lead to other difficulties with aspects of higher level thinking and behavioural control. There is a dearth of specialist supports and services throughout Ireland for this condition. In 2021, the Neurological Alliance of Ireland published a joint report Meeting the Needs of People with Korsakoffs Syndrome in Ireland with Alcohol Action Ireland and Bloomfield Mental Health Services, Meeting the Needs of People with Korsakoffs Syndrome in Ireland

NAI and the other members of the Interest Group on Korsakoffs are calling for the development of a dedicated pathway for people with Korsakoffs syndrome in Ireland.